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Touching tribute for young boy who died after misdiagnosis

On April 6 the five-year-old was at home with his family when he experienced a seizure and was immediately rushed to hospital to undergo emergency brain surgery.Originally discovering what surgeons believed was a small blood clot, was found to be quite large, leading from his carotid artery to the left side of his brain.Describing it as the worst day of her family’s life, mum Taylor said she was at a loss as to why her otherwise perfectly healthy five-year-old was in the ICU.“It was found that Finley suffers from a rare heart condition and something we were told was asthma from the age of one was something much more severe – this condition caused a clot in his heart which shot off to his brain causing the stroke.”On that day Finley was diagnosed with restrictive cardiomyopathy which is a condition where the chambers of the heart become stiff overtime.Unexpectedly the strong little boy spoke his first words two days later, and took his first steps three days later, making what doctors said was one of the fastest stroke recoveries they had seen.In a matter of days, Finley was back to his normal fun-loving self and able to celebrate Easter at home with his younger brother Hayden, dad Josh and mum Taylor, until the unthinkable happened.“I woke at 7:30am to an unusual sound… when I walked into [his] bedroom I found Finley barely conscious and yelled out to Josh to call an ambulance as I thought he had suffered another stroke.”Critical care paramedics performed CPR on Finley for two and a half hours but nothing could be done to restart his heart.“I didn’t understand how I tucked my children into bed the night before… and now my son was going to die.” said Taylor.It wasn’t until Finley’s autopsy was completed that it was revealed he actually had hypertrophic cardiomyopathy – a disease in which the heart muscle becomes abnormally thick – one that Taylor nor anyone else close to her had ever heard of.“I personally feel he was very quickly diagnosed with asthma and we took the word of the doctors like most parents would, but now looking back at the opportunities there were to look further it’s quite disappointing to me,” she said.“I truly hope that reading this, another doctor might keep cardiomyopathy in the back of their minds when diagnosing a child with asthma symptoms.”In memory of the selfless, lego-loving boy, the childcare that he attended and his brother Hayden still goes to has lovingly created ‘Finley’s memorial garden’.The community has also launched a fundraiser to support the young Hobart family as they deal with the heartbreaking loss of the most ‘compassionate’ and ‘brave’ little boy they knew.“Our main goal is to keep Finley’s memory alive and continue to support Hayden.” said LittleBee owner Kathy Lewin. “His favourite colour is red so we’ve got lots of red flowers.”You can donate to the fundraiser here.

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